Links

HPTH website - USA   
Hypoparathyroidism Association Inc Our parent organisation and the worldwide HPTH Association based in USA and run by James Sanders.

Thyroid Cancer Support UK Yahoo group  
Our UK online support group for Thyroid Cancer, run by Ruth Pink


Alphabetical listing of other links

Ableize  
Disability and health directory. Lists disabled and health goods, care and services plus information and support, access issues and news. Includes mobility and care products. Free UK submissions.

Addison's Disease Self Help Group  
The ADSHG is the UK support group for men, women and children diagnosed with Addison's Disease (or adrenal insufficiency).

AMEND  
AMEND, the Association for Multiple Endocrine Neoplasia Disorders, is a UK registered charity supporting patients with Multiple Endocrine Neoplasia and associated growths, their families and friends.

Bone Key   
A news service for scientists working on bone and mineral conditions

Bridget's Blog  
Blog about living with Hypoparathyroidism.

British Association for Counselling and Psychotherapy (BACP)  
Find a recognised therapist in your area.

British Association of Endocrine Surgeons  
Professional Association, gives guidelines for surgeons

British Thyroid Assocation  
A non-profit making society of professional clinical specialist doctors and scientists in the UK who manage patients with thyroid disease and/or are researching into the thyroid and its diseases in humans.

British Thyroid Foundation  
A patient led association for those with thyroid disorders.

But You Don't Look Sick  
Support for those with 'invisible illnesses.'

Butterfly Thyroid Cancer Trust   
Butterfly Thyroid Cancer Trust is the first registered charity in the UK dedicated solely to the support of people affected by Thyroid Cancer and is available to patients Nationwide. Helpline: 01207 545469 E mail:enquiries@butterfly.org.uk

Calcium - all you need to know ( from Flesh and Bones.com)  
An excellent resource - a PDF giving everything you need to know about calcium, with diagrams.

Calcium and the menstrual cycle  
Cyclical changes in calcium metabolism across the menstrual cycle in women with premenstrual dysphoric disorder by Thys-Jacobs S, McMahon D, Bilezikian JP. Columbia University, New York.

CancerHelp UK   
The patient information website of Cancer Research UK.

CLIMB - Children Living With Metabolic Diseases  
UK umbrella group providing information and support for parents, carers, professionals and patient support groups.

Contact A Family  
Contact a Family is the only UK-wide charity providing advice, information and support to the parents of all disabled children - no matter what their disability or health condition. Freephone Helpline on 0808 808 3555

Dipex  
Collecting patient experiences of health and illness - you can add yours too.

Dorset Pituitary Foundation Awareness   
The Dorset and Hampshire website is run by one of our members, Peter Randle. It is part of the UK Pituitary Foundation based in Bristol. Telephone buddies are available.

Endocrine Surgeon Website  
A clear and concise endocrinolgy resource for professionals and patients

Endocrineweb.com  
Informative site about endocrine disorders and surgery

European Thyroid Association  
Aims to promote and improve knowledge of the thyroid field.

Familial Idiopathic Hypoparathyroidism  
Description from GP Notebook UK

Genetic Conditions Specilaist Library  
This Specialist Library brings together information on genetics and genetic conditions, from a variety of sources, including Clinical Guidelines, Systematic Reviews, Best practice articles and Patient information leaflets.

Healthcare Republic (MIMS)  
Medical news and primary care articles for UK GPs, nurses, practice staff and community pharmacists.

How to obtain your medical records  
From The Patient's Association

HPTH Website - BAHRAIN  
HPTH Website run by Hassan Fadhul

HPTH Website - ICELAND  
Halla Ruth was the first person in the world to take Forteo ( parathyroid hormone). Here you can read her story and see her video.

HPTH website - Indiana,USA  
A chapter of the Hypoparathryoidism Association run by Phyllis Beller

HPTH Website - NORWAY  
HPTH website run by Helle Jensen

HPTH Yahoo Group  
HPTH online support group on Yahoo.

Hyperparathyroidism  
From the Endocrine and Metabolic Diseases Information Service, USA

Hyperparathyroidism  
An explanation by Associate Professor T. Diamond of the University of New South Wales

Hypocalcaemia  
(patient.co.uk)

Hypocalcaemia: Diagnosis and Treatment  
Very informative article on the causes, symptoms and treatment of hypocalcaemia in all types of hypoparathyroidism.

Magnesium: A Key to Calcium Absorption  
By Nan Kathryn Fuchs, Ph.D.

MedicAlert Foundation  
Medical identification bracelets etc giving emergency details for people like us on lifelong medication.

Medicines Guide  
New resource giving information about individual medicines that is up-to-date, reliable and understandable.

Mr John Lynn - London endocrine surgeon  
Website of this recommended London endocrine surgeon

New Vitamin D Report (USA Sept 2007)  
Given at 'Vitamin D and Health in the 21st Century: an update'. NIH conference in Maryland , USA

NICE Guidelines for Secondary Hyperparathyroidism  
GUidlines for the treatment of Hypoparathyroidism with Cinacalcet for poeple with kidney disease on dialysis

Parathyroid Gland Disorders  
Written by Dr Colin Paterson, consultant physician

Parathyroid.com   
website of Dr Norman, parathyroid surgeon (USA)

Patient UK  
A directory of UK health, disease, illness and related medical websites that provide patient information.

Preotact  
Full length parathyroid hormone (not yet available for HPTH patients)

Rights at work  
Getting and keeping a job with an illness

Shawny's Blog  
Living with HPTH

Society for Endocrinology (UK)  
www.endocrinology.org

SpecialistInfo.com  
Database of over 34, 000 consultants and over 37,000 UK GP's.

The Endocrine Surgery Centre  
This surgery centre is based at the Cromwell Hospital, a private hospital in London. Useful website

The Genetic Interest Group (GIG)  
A national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders. HPTH UK is a member of GIG.

The National Osteoporosis Society  
The National Osteoporosis Society is the only national charity dedicated to improving the prevention, diagnosis, and treatment of this fragile bone disease for women and men.

The Patient's Association  
A national charity providing patients with an opportunity to raise concerns,get advice and share experiences of healthcare. Helpline 0845 6084455 or 0208 423 8999

The Royal Marsden Hospital,London  
UK's leading cancer centre

Thyroid Manager  
Send a thyroid related question to Professor John Lazarus, ex president of the British Thyroid Association and co - author of Thyroid Manager.

Thyroid UK  
Campaigning for and providing information and support for people with thyroid and related disease. Run by Lyn Mynott

Thyroid-Disease.org.uk  
Thyroid Patient website


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